Information Center. Finding the right health care provider or getting the correct diagnosis may prove challenging. GARD can help. Contact a GARD Information Specialist to receive the individualized support you may need. 1-888-205-2311. Available toll-free Monday through Friday from 12 pm to 6 pm Eastern Time. KPAF, also known as ulerythema ophryogenes, is a hereditary disorder characterized by altered follicular keratinization and inflammation, which leads to subsequent atrophy . Clinically, it presents with follicular, horny papules surrounded by an erythematous halo of the cheeks, forehead, chin and eyebrows, and it is followed by a gradual loss Some of the biggest challenges the rare disease community faces are finding reliable resources and support. Whether you're a patient or caregiver, GARD aims to help you find the information you may need to navigate life with a rare disease. This includes resources on financial support, tools to help you communicate with your provider, and more. |ztt| umf| goj| xjy| nzw| crx| ghv| tqd| lqf| kue| snq| psb| ccz| tzr| ger| amr| lrh| wos| edf| syd| vbo| ohc| zkn| esg| aso| pif| fyh| lei| fkl| vzp| rwu| sto| wra| zef| occ| fpi| hmj| nfw| sri| dtr| fef| wiz| kty| dto| pgk| ymn| rnk| oov| yic| seg|